Thursday, May 21, 2009
my conditions 5/27/09
Hi everyone, it's amazing how weeks go bye so quickly. The last couple of weeks have been tough, but I'm still standing and smiling....have to stay strong, any form of weakness could escalate this disease. It seems to me at this point, the rate of progression appears to have been more steadier. Some symptoms more than others are deteriorating at a horrifying pace. I can't seem to raise my hands/arms to eat...I've gone from 203 lbs to 175 lbs.. I don't mind losing a few, but belly isn't going down, my pants keep falling down, my butt is shrinking..lol I figured another way to eat, seems to work for me; It's hard explain, but it is creative! What's official is I can't button or zip my clothes at all, my wife has been dressing me. I fell a few more times, my dog (beagle/Dotson), pulled me up the stairs, I fell face forward....ooch!! The ALS clinic delivered a loan a motor chair till mine is completed. Facing my seven year old daughter has been hard, but she is doing good (keep her in your prayers). I finally sheds some tears today, though some seems to be laughter? I figure humor and inner peace are keys to slowing the progression. I had a out of the blue thought; has anyone checked to see how many are left and right handed and is that a factor why some go weak waist up, waist down?? All my tools are collecting dust, not able to do much with them..can't pull start lawn mover. I noticed I couldn't tear a piece of paper, package of sugar...having others do things for me OK (I guess), I feel like a baby getting spoon fed. I appreciate all the help and assistance, can't thank everyone enough, my prayers go out to you and your families. I got a new hat couple weeks ago from a dear friend "Maureen", it says "Relax, God's in control"....my faith is strong things could change, I want to see my children's children. Well that seems to sum it up as of now, if I miss anything I'll add it to the next update, I'm getting very tired....Please come back in week or two for updates and thank you all for your prayers, please pass it on....Also please pray the money in, things have been difficult, haven't worked since jan/08, still trying disability. I'm not looking for a hand out just prayers, God provides.............
Subscribe to:
Post Comments (Atom)

No comments:
Post a Comment